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Congenital Health Information Websites

Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is a nonprofit organization which seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community.

American Heart Association
This site provides general information about the heart, posts the warning signs for heart attack and provides reference guides to healthy diet.

Children's Health Information Network-Congenital Heart Diseases
This site provides extensive information for families of children with congenital and acquired heart disease, adults with congenital heart defects, and professionals who work with them.

Children's Heart Link
Their mission is to improve the prevention and treatment of children with heart disease in developing countries

Children's Heart Society
This is a non-profit, non-government funded charitable organization, completely operated by volunteers and support families of children with heart disease. It offers inspiration and awareness.

Cincinnati Children's Hospital Medical Center
This site has excellent graphics to explain pediatric heart conditions and problems: signs, symptoms, diagnoses and treatments.

Congenital Cardiac Centre for Adults
This site is the Internet home page for the Canadian Adult Congenital Heart Network.

International Society for Adult Congenital Cardiac Disease
The purpose of the International Society for Adult Congenital Cardiac Disease is to promote, maintain and pursue excellence in the care of adults with congenital cardiac disease. The Society is dedicated to the advancement of knowledge and training in medical disciplines pertinent to congenital heart disease in adults.

Heart Kids of SA Inc.
Heart Kids of SA is a support group formed in South Australia in 1987. It offers comfort and support to families who have a child who is born with congenital heart problems. It provides discussion groups, real life stories and e-mail to contact the organization itself.

Heartz "R" Us
Davey is an adult that has been living with a complex heart disease for the past 4 decades. He talks about his surgeries and life overall. It is very useful information for heart children and their families.

Little Hearts: A Support Network for Parents of Children with CHD
This is a non-profit organization that provides support, resources, and hope for the parents of children living with a congenital heart defect.

PediHeart
This is an excellent site for parents and children. It offers information about the heart as well as heart defects. It provides links and allows you to ask questions.

Save A Child's Heart
This is one of the largest undertakings in the world providing urgently needed pediatric heart surgery and follow-up care for children from third world and developing countries.

Syndromes and Disorders
This is an excellent source of specific heart disorders, syndromes and procedures. It provides links for each disorder with detailed explanation.