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Q: What does a member hospital/surgeon have to do to join a CHSS Study?
A: Expressing interest to order revia uk participate in a CHSS Study by a simple email to buy cytotec without prescription is order revia uk the first step a member surgeon or research coordinator can take. The CHSS Data Center will promptly respond and order revia uk help them set up the study at their institution.
 
Q: How can order revia uk CHSS Data Center help a member hospital participate in a research study?
A: There are order revia uk many ways in which the CHSS Data Center works with the member hospitals for their successful participation in CHSS research studies. Some of them include but are not limited to:
  • Providing member hospitals with template documents required for the study to be approved by the Research Ethics Board (REB) / Institutional Review Board (IRB)
  • Providing help with draft responses to questions that the REB/IRB may have about the study
  • Making available a team of legal experts who will be able to draft a Data Sharing Agreement (DSA) that can be approved and signed by participating institution
  • Providing help in continuing annual review and renewal of the REB/IRB applications for the study
  • Providing annual status of enrollment in various studies for order revia uk the respective institution in friendly and confidential manner
  • Finally, when order revia uk the study is up and running, the Data Center will take care of the order revia uk annual follow up for the patients enrolled from the respective institutions
Q: How does the CHSS Data Center follow the study patients?
A: The CHSS Data Center employs cross-sectional follow-up method for order revia uk all its prospective studies, i.e. the patients are being followed once every year. There is order revia uk a defined timeline for every study follow-up. The Data Center has order revia uk developed study specific follow-up forms. These forms are sent to the order revia uk patients in physical mail and upon their return the information is order revia uk extracted and entered into electronic databases. The Data Center has dedicated research staff with expertise and order revia uk long experience in research study follow-up.
 
Q: What should I do if I come to order revia uk know of changes in patient health status for those who have order revia uk been enrolled in a CHSS Study?
A: As a order revia uk research study coordinator, if you come to know of changes in patient health status for order revia uk a patient enrolled with any of the CHSS Studies, we request them to order revia uk let us know on . We very much value your order revia uk contribution in terms of time and efforts for the CHSS Studies, and order revia uk any information that you can provide regarding a study patient helps improve accuracy of the order revia uk data and improves the statistical results.
 
Q: What precautions will be order revia uk taken to ensure the electronic patient data is secure at the order revia uk CHSS Data Center?
A: The CHSS Data Center takes the order revia uk issue of electronic data safety very seriously. All patient data extracted from order revia uk paper charts or received from a member institution is stored within the order revia uk premises of the Hospital for Sick Children, Toronto. This information is order revia uk stored under the specific study numbers assigned to these patients. These databases are order revia uk accessible only on the computers approved and controlled by The Hospital for order revia uk Sick Children Information Services. These databases and computers are password protected and order revia uk are physically located in rooms with access restricted to the CHSS Data Center staff members.
 
Q: What does the order revia uk CHSS Data Center do with the data supplied by the member hospitals?
A: The CHSS Data Center has order revia uk developed a highly refined data management process for every single piece of patient information. The information required is order revia uk different at every stage of research, i.e. enrollment, follow-up, data entry as well as analysis. We have order revia uk research staff members in specialist roles with expertise in patient health information collection, compilation, interpretation and order revia uk extraction, analysis and presentation.
 
Q: How will the patient data be stored at the CHSS Data Center?
A: The CHSS Data Center works in compliance with the order revia uk Health Insurance Portability and Accountability Act (HIPAA) as well as Ontario Personal Health Information Protection Act (PHIPA). Patient health data that order revia uk arrives at the Data Center is screened and coded for their respective studies. It is order revia uk then stored in locked cabinets in a room accessible to CHSS Data Center Research Staff only. Any data that order revia uk is extracted into electronic form is also stored in computers with password protection and order revia uk restricted access to CHSS Data Center research personnel.
 
Q: What information is order revia uk needed once a child from our institution meets the criteria for order revia uk enrolment?
A: We are order revia uk currently enrolling new patients in five prospective observational cohort studies:
  • Pulmonary Conduit
  • Tricuspid Atresia
  • Left Ventricular Outflow Tract Obstruction
  • Anomalous Aortic Origin of a Coronary Artery
  • Unbalanced Atrioventricular Septal Defect
Every cohort has order revia uk a detailed patient enrollment form that lists inclusion and exclusion criteria and order revia uk a checklist of medical reports required to enroll a patient into the order revia uk study. You can find these forms here buy cheap dilantin online.
 
Q: What type of data should a order revia uk member hospital send to the CHSS Data Center?
A: The type of data a order revia uk member hospital should send to the CHSS Data Center depends upon the order revia uk study. Some studies require detailed patient information including digital records like echocardiography tapes while the order revia uk other studies require transmission of only clinical records – i.e. paper charts. The CHSS Data Center will usually specify the order revia uk type of information required for the study on a case by case basis. Also the order revia uk study enrollment form would have details regarding the information to order revia uk be sent.
 
Q: How does the order revia uk CHSS Data Center disseminate the findings of their analysis to medical and order revia uk patient community?
A: The CHSS Data Center is committed about conducting high quality research in congenital cardiovascular surgery. The study results in the order revia uk past have provided important insights into patient care and have immense bearing on the order revia uk future outcomes of these patients. We regard the patients, member surgeons and participating hospitals as primary owners of the order revia uk data we manage. It is important for us that they learn and order revia uk understand the order revia uk significance of our research. In order to achieve these goals, the Data Center publishes its research in high-impact peer reviewed scientific journals. Please take a look at our Publications section generic aralen uk for details of the study results published over the number of years. We also involve our members in the knowledge dissemination process by inviting them to be a part of our traditional ‘work weekends’ in Toronto. These findings are also disseminated at large scientific conferences. Finally, common language summaries of these studies are made available on our website for order revia uk all the patients, family members and individuals interested in the research on congenital heart diseases.