We strive to provide breakthrough and important information, support and knowledge to our patients, families and the medical community.
We would love for you to get involved. Sharing your success story with others is an inspiration to all so we would love to hear yours. With over 5000 patients enrolled to date, each and every individual is special and unique. Others would like to know of your progress, triumphs and challenges.
Not only does it bring awareness and educates others but individuals going through similar experiences can find comfort in knowing someone out there cares, knows & truly understands how they are feeling. Building these relationships is of utmost importance.
Your donations to the CHSS Data Center support the research that leads to breakthrough information and support to our over 5000 patients. Help us today so we can help those in the future.
Volunteering your time and/or providing feedback, suggestions and ideas how we can continue and further our vision is important to us. Keep in touch as we would love to have you as part of our team.
volunteer opportunities >
We would like to thank our sponsors who contribute generously to help make our research possible. Learn more about these organizations and how they support us and many sponsor opportunities that your organization could get involved with.
visit our sponsor wall >