We strive to provide breakthrough and important information, support and knowledge to our patients, families and the medical community.
We would love for you to get involved. Sharing your success story with others is an inspiration to all so we would love to hear yours. With over 5000 patients enrolled to date, each and every individual is special and unique. Others would like to know of your progress, triumphs and challenges.
Not only does it bring awareness and educates others but individuals going through similar experiences can find comfort in knowing someone out there cares, knows & truly understands how they are feeling. Building these relationships is of utmost importance.