These studies have been closed for new enrollment but we continue to follow these patients, except for Coarctation cohort (see Appendices in current study protocol).
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Study Protocol
Study Protocol (with track changes) if needed for IRB/REB Submissions:
Protocol Amendment Summary (if needed for IRB/REB submissions):
Patient Demographics
Consent & Assent and Cover Letters (for reference)
For Parent/Guardian:
For Patient/Adult:
Welcome Package & Related Documents (Generic)
Annual Follow Up Documents (Generic)
Linking Logs (Generic)
Approval Letter