These studies have been closed for new enrollment but we continue to follow these patients, except for Coarctation cohort (see Appendices in current study protocol).
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If you would like a Microsoft Word version of any of the following documents, please email Kathryn Coulter with your request.
Study Protocol (with track changes) if needed for IRB/REB Submissions:
Protocol Amendment Summary (if needed for IRB/REB submissions):
Consent & Assent and Cover Letters (for reference)
Welcome Package & Related Documents (Generic)
Annual Follow Up Documents (Generic)
Linking Logs (Generic)